Last
Thursday and Friday, Lydia attended youth conference. I prepared all her
food and medicines and told myself that she would be fine without me
anywhere around. I still haven't figured out the right balance of
letting her be independent and still making sure that I am there in case
of a medical emergency. I am getting better though.
All those years of daily life vs death experiences make it hard to completely let go. Her mobility is becoming less and less so that is a factor too.
When we arrived one of my dear friends was in charge of Lydia's group and all my fears gently dissipated, I knew she would have a great time. Lydia loves quilting and that was one of the activities. She had such a grand time being with friends and learning how to share the gospel of Christ. They did service and had a lot of fun too!
Maliea, Thayne and I hopped on the Metro and headed into the District. For the next 9 1/2 hours we followed Thayne from one exciting exhibit to the next.
He loves the Air and Space Museum. He loves anything that is hands on, so we ran around finding as much stuff to touch as possible.
I think that Maliea really had a great time there also. Even if her enjoyment was a bit rushed by her brother's enthusiasm.
We had a snack then walked to the carousel. The ride before had been packed with children but then somehow Thayne got the whole thing by himself. The conductor let it go around double for him!
We also had so much fun at the American history and Natural history museum. Lydia did not need to be picked up until 8:00 pm that night so we had lots of time to walk around and enjoy the beautiful day. Needless to say our feet did not enjoy that many hours though. Even Thayne started to slow down at the end.
On Friday , I was able to feel comfortable enough to let Lydia be up there the whole day without me being just minutes away. I am not sure I could have done another long day chasing Thayne around DC again. I love that Lydia had a good experience at youth conference and honestly it was nice being in the museums without having to chase him and push a wheelchair. One thing that we have learned is always, always wear good shoes. There is nothing like exploring the city on foot but you don't want your feet to hate you at the end of the day.
All those years of daily life vs death experiences make it hard to completely let go. Her mobility is becoming less and less so that is a factor too.
When we arrived one of my dear friends was in charge of Lydia's group and all my fears gently dissipated, I knew she would have a great time. Lydia loves quilting and that was one of the activities. She had such a grand time being with friends and learning how to share the gospel of Christ. They did service and had a lot of fun too!
Maliea, Thayne and I hopped on the Metro and headed into the District. For the next 9 1/2 hours we followed Thayne from one exciting exhibit to the next.
He loves the Air and Space Museum. He loves anything that is hands on, so we ran around finding as much stuff to touch as possible.
I think that Maliea really had a great time there also. Even if her enjoyment was a bit rushed by her brother's enthusiasm.
We had a snack then walked to the carousel. The ride before had been packed with children but then somehow Thayne got the whole thing by himself. The conductor let it go around double for him!
We also had so much fun at the American history and Natural history museum. Lydia did not need to be picked up until 8:00 pm that night so we had lots of time to walk around and enjoy the beautiful day. Needless to say our feet did not enjoy that many hours though. Even Thayne started to slow down at the end.
On Friday , I was able to feel comfortable enough to let Lydia be up there the whole day without me being just minutes away. I am not sure I could have done another long day chasing Thayne around DC again. I love that Lydia had a good experience at youth conference and honestly it was nice being in the museums without having to chase him and push a wheelchair. One thing that we have learned is always, always wear good shoes. There is nothing like exploring the city on foot but you don't want your feet to hate you at the end of the day.
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